Victory For Victor

Victory For Victor

Victory For Victor
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Sophia was diagnosed with VSD  and aortic stenosis in utero. I gave birth to her in Seattle, WA (We're from Alaska) because there are no surgeons here in AK. She had her first surgery at one week old. They closed the hole in her heart and repaired the aortic stenosis. We returned home in under a month and all things appeared well. When Sophia was four months old we were medivaced back to Seattle because of scar tissue blocking her artery. A stent was placed in her heart and a year later we…

Sophia was diagnosed with VSD and aortic stenosis in utero. I gave birth to her in Seattle, WA (We're from Alaska) because there are no surgeons here in AK. She had her first surgery at one week old. They closed the hole in her heart and repaired the aortic stenosis. We returned home in under a month and all things appeared well. When Sophia was four months old we were medivaced back to Seattle because of scar tissue blocking her artery. A stent was placed in her heart and a year later we…

When you look at 13 year old Jarod Davis, you will more than likely see a huge smile, and would never imagine all that he has had to go through in his short life. Born with a complex congenital heart defect known as Hypoplastic Left Heart Syndrome (HLHS), essentially half a heart, he started his life as a true fighter. He underwent his first open heart surgery at 2 days old, his second at 6 months old and third at 2 years old. Though his heart defect has been "repaired", it isn't "fixed" and…

When you look at 13 year old Jarod Davis, you will more than likely see a huge smile, and would never imagine all that he has had to go through in his short life. Born with a complex congenital heart defect known as Hypoplastic Left Heart Syndrome (HLHS), essentially half a heart, he started his life as a true fighter. He underwent his first open heart surgery at 2 days old, his second at 6 months old and third at 2 years old. Though his heart defect has been "repaired", it isn't "fixed" and…

Mason was born with coarctation of the aorta, 4 large VSDs, split sternum, joint cervical vertebrae, an omovertebra on his shoulder and only one kidney. He had his open heart surgery at 1week old where they repaired the coarch and closed one hole. Over time two other holes have closed so only one remains.

Mason was born with coarctation of the aorta, 4 large VSDs, split sternum, joint cervical vertebrae, an omovertebra on his shoulder and only one kidney. He had his open heart surgery at 1week old where they repaired the coarch and closed one hole. Over time two other holes have closed so only one remains.

Trey Broox Hardy  Born June 2nd 2011  Born with Hypoplastic Left Heart Syndrome with very leaky mitro valve  We were told that his heart wasnt fixable because it was so bad, we were put on the transplant list the day after Trey was born. A month and half later one of the echo's showed the mitro valve not leaking as much, they took our case to the bored and decided to try the surgeries.  Trey was in the CICU for 3 months.He is 7 months old now. He amazes me to watch everyday he is so strong…

Trey Broox Hardy Born June 2nd 2011 Born with Hypoplastic Left Heart Syndrome with very leaky mitro valve We were told that his heart wasnt fixable because it was so bad, we were put on the transplant list the day after Trey was born. A month and half later one of the echo's showed the mitro valve not leaking as much, they took our case to the bored and decided to try the surgeries. Trey was in the CICU for 3 months.He is 7 months old now. He amazes me to watch everyday he is so strong…

This is our first and only child, our miracle, Eleanor Vivian. We learned of her CHD at 25 weeks of pregnancy. Her prenatal diagnosis was Critical Aortic Stenosis. We were told that she would most likely "spontaneously abort" and that we would have to suffer a stillbirth. Despite this bleak prognosis, she thrived the rest of the pregnancy and was born at 38 weeks via C-section, on October 12, 2010 weighing 7lbs 3oz. She was taken directly to the cath lab where her atrial septum was stented…

This is our first and only child, our miracle, Eleanor Vivian. We learned of her CHD at 25 weeks of pregnancy. Her prenatal diagnosis was Critical Aortic Stenosis. We were told that she would most likely "spontaneously abort" and that we would have to suffer a stillbirth. Despite this bleak prognosis, she thrived the rest of the pregnancy and was born at 38 weeks via C-section, on October 12, 2010 weighing 7lbs 3oz. She was taken directly to the cath lab where her atrial septum was stented…

Our son, Daniel, was post-natally diagnosed with several congenital heart defects at day 2 of life.  He underwent open heart surgery at day 7 of life for coarctation of the aorta, several ASDs, and a large VSD at Children’s Hospital Boston.  He is now three months old and recovering marvelously.  He still has two outstanding congenital heart defects, a bicuspid aortic valve and parachute mitral valve, that are being closely monitored with possible future surgeries pending.  We are so…

Our son, Daniel, was post-natally diagnosed with several congenital heart defects at day 2 of life. He underwent open heart surgery at day 7 of life for coarctation of the aorta, several ASDs, and a large VSD at Children’s Hospital Boston. He is now three months old and recovering marvelously. He still has two outstanding congenital heart defects, a bicuspid aortic valve and parachute mitral valve, that are being closely monitored with possible future surgeries pending. We are so…

Carley was born a healthy 8lbs 7.5 oz in Dcember 2001.  When she was 2 days old, she started turning dusky (blue) whenever she cried.  Thanks to an observant nursery nurse (Laura) who recognized she was in distress and her Aunt Erica (an OB nurse) who recognized her symptoms as those of a heart defect, Carley immediately received life saving medical care.     She was later diagnosed with a severe heart defect, Hypoplastic Left Heart Syndrome (HLHS), and was life flighted from Virginia to…

Carley was born a healthy 8lbs 7.5 oz in Dcember 2001. When she was 2 days old, she started turning dusky (blue) whenever she cried. Thanks to an observant nursery nurse (Laura) who recognized she was in distress and her Aunt Erica (an OB nurse) who recognized her symptoms as those of a heart defect, Carley immediately received life saving medical care. She was later diagnosed with a severe heart defect, Hypoplastic Left Heart Syndrome (HLHS), and was life flighted from Virginia to…

My son, Zachary seemed healthy and perfect the day he was born, but six days later doctors at Children's Memorial Hospital in Chicago discovered he had multiple heart defects. He was born with a coarctation of the aorta, large VSD, a large ASD, bicuspid aortic valve, PDA, and a PFO.  He was immediately admitted to the ICU and underwent his first heart surgery at 11 days old. The procedure was successful, but Zachary became worse.  The next eight weeks were spent in the ICU going through…

My son, Zachary seemed healthy and perfect the day he was born, but six days later doctors at Children's Memorial Hospital in Chicago discovered he had multiple heart defects. He was born with a coarctation of the aorta, large VSD, a large ASD, bicuspid aortic valve, PDA, and a PFO. He was immediately admitted to the ICU and underwent his first heart surgery at 11 days old. The procedure was successful, but Zachary became worse. The next eight weeks were spent in the ICU going through…

Meet brave heart, Asher, our courageous hero! He is our little heart warrior born October 27, 2010 with Tetralogy of Fallot with Pulmonary Atresia. We were unaware of Asher’s heart defect during pregnancy, so we were shocked and heartbroken when our sweet baby boy was born into this world fighting for his life. He has bravely endured 2 open heart surgeries and 3 heart catheterizations before his 1st birthday at Children’s Hospital of Philadelphia. He also has some developmental delays due to…

Meet brave heart, Asher, our courageous hero! He is our little heart warrior born October 27, 2010 with Tetralogy of Fallot with Pulmonary Atresia. We were unaware of Asher’s heart defect during pregnancy, so we were shocked and heartbroken when our sweet baby boy was born into this world fighting for his life. He has bravely endured 2 open heart surgeries and 3 heart catheterizations before his 1st birthday at Children’s Hospital of Philadelphia. He also has some developmental delays due to…

This is Severin he has CHDs but CHDs do not have him  "Their stats" vs His stats  "CHD" Isn't that what old people have? "Less then .03% chance of these heart defects happening." Who cares it happened to my baby - so that makes it 100% for him! "Only 60% chance of survival." Not today.  PreDiagnosis: Tricuspid Artresia, Hypoplastic Right Heart Syndrome, Transposition of Great Arteries, Coarctation of the Aorta, Ventrical Septal Defect, Double Inlet Left Ventrical, his Pulmonary Artery is too…

This is Severin he has CHDs but CHDs do not have him "Their stats" vs His stats "CHD" Isn't that what old people have? "Less then .03% chance of these heart defects happening." Who cares it happened to my baby - so that makes it 100% for him! "Only 60% chance of survival." Not today. PreDiagnosis: Tricuspid Artresia, Hypoplastic Right Heart Syndrome, Transposition of Great Arteries, Coarctation of the Aorta, Ventrical Septal Defect, Double Inlet Left Ventrical, his Pulmonary Artery is too…